cross-posted from: https://mander.xyz/post/50953824
The confidential health records of half a million British volunteers have been offered for sale on Chinese website Alibaba, the UK government has confirmed.
The data, belonging to participants in the UK Biobank project, was found for sale on three separate listings last week. The records have now been removed and it is not believed any sales were made.
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Ian Murray, the technology minister, told the Commons: “On Monday 20 April, the UK Biobank charity informed the government that it had identified their data had been advertised for sale by several sellers on Alibaba’s e-commerce platforms in China.
“Biobank told us that three listings that appear to sell … Biobank participation data had been identified. At least one of these three datasets appeared to contain data from all 500,000 UK Biobank volunteers.”
The data found for sale was “de-identified”, meaning it does not include names, addresses or precise dates of birth.
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The UK Biobank holds the health data of 500,000 volunteers, including genome sequences, brain scans, blood samples and diagnostic records. Scientists at universities and private companies across the world apply for access and, until late 2024, were free to download data directly on to their own computer systems – something that experts have repeatedly warned posed a security risk.
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